Travis and Kelly' Story.

This story began from sharing emails with Kelly from the 1st June 2009
trav2

Hi Travis and Kelly,
My husband died 12 years ago on the 1st June of pleural mesothelioma, just under 5 months from the day he was diagnosed.
At that time in New Zealand they were just telling you to go home and get everything in order. Nothing they could do.
It is nice to hear that people are surviving longer now.
Because of this I set up a website so people could put their stories on and give some hope to others. If you would like to have a look through it you might like to add your story, many regards from Deidre

Dear Deidre
My heart goes out to you on this time of year when you are remembering your loved one....
thanks for the kind words...we are still fighting the horrible Meso monsters...although we now have retreated to hospice care...we have done every possible treatment and now have resolved to just wait and see after 7 years ,...
he is only 37 years old, but we still have hope and faith..thanks again!!!

Hi Kelly,
I did not realise how young your husband was. Was he only 30years old when he was diagnosed?.
That is a terrible thing to have happened to you both.
How was he exposed to asbestos?. Where do you live.

If you managed to look through my website you will see that “hope” is a big thing that can keep you going.
I do believe that.
When Thom was diagnosed there was not one ray of hope given to him and he did as they said and came home to die. They took the hope from him. My sister was diagnosed with ovarian cancer and was told that it was terminal but with some treatment they would give her a bit more time.
She had hope.
She went to Australia a couple of times and then all round New Zealand to visit with her family and friends.
She lived her time of dying where as Thom died his time of living.
One never knows what is round the corner
Regards from Deidre

Dear Deidre,
Travis was 29 when he was diagnosed. We live in South Dakota and went to the Mayo Clinic in Rochester MN at that time, he was also told to go home and get his affairs in order and maybe try chemo but that it was probably hopeless.
It was so fortunate that I had researched online and found a clinical trial at the National Institute for Health in Bethesda MD.
He did this huge surgery and chemo to the peritoneum but it returned 6 months later. The Dr there, referred us to Dr ...... in Chicago and he was a God send...
He started him on Alimta which at that time wasn't even FDA approved, but Trav's tumors were reduced by70%!!!
We continued with life then 2 years later the tumors returned in his lungs, around his heart and neck nodes...we have done numerous clinical trials and conventional treatments since; with no reduction.
He has now decided along with the Dr's that there really is nothing else to try, so now we are just living like today is as if there is no tomorrow.
Trav had several small exposures as a child through his dad's work and such but don't know exactly where he was exposed.
Nice chatting hope to hear from you soon.
Kelly

Date: Mon, 29 Jun 2009
Hi Kelly, can I put your story on my site using the emails you have sent me. I will show you what I have done before putting it on the net for your approval. If so have you any photos you would like to go on also,
regards from Deidre

Hey Deidre,
It would be fine and if you want to read an article that Nevada Cancer Institute did on Tray it is listed under publications and it was the spring 2006 issue of their breakthrough magazine on the NVCI site.
There is also a picture of him on there.
Kelly

travis2

Tray knew he was in trouble when he couldn’t tie his shoes.
Aside from his rapidly bulging belly, Travis looked like a picture of perfect health; strong, vibrant, rugged – a real man’s man who loved football, family and the great outdoors.
Devoted husband to Kelly, loving father to Cody and Corey.
The 29-year-old Travis had his whole life in front of him.
Then, out of the blue, his stomach started swelling. At first just a little.
“Travis, you look pregnant,” Kelly teased.
But the bloating worsened. Finally, it was so bad that he could barely eat without feeling sick.

So the Bales went to their doctor and the news was devastating.
Travis was diagnosed with malignant mesothelioma, a disease in which malignant cells form in the lining of the chest or abdomen. It is a rare form of cancer that is frequently associated with asbestos exposure.
That night the Bales scoured the internet and what they read was horrifying;
life expectancy for malignant mesothelioma was 12-18 months.
“I thought I was going to die,” Travis recalls.

As residents of South Dakota, the Bales did not have access to a major medical center.
So, they packed their bags, left their boys and set out to find the best treatment for Travis.
Their first stop was the Mayo Clinic in Rochester, Minnesota, one of the leading cancer institutions in the nation.
They told him that nothing could be done and that Travis should pretty much get his affairs in order.The Bales persevered. Next stop, the National Institutes of Health in Bethesda, Maryland.
NIH immediately enrolled Travis in a clinical trial.
Unfortunately, that didn’t work. Neither did the next trial they put him on.
Haggard and thin, his weight plummeted from 220 pounds down to 150.
With nowhere else to turn, the Bales went back home.
They started looking at cemetery plots and talked to the boys about their dad dying.
“There was a lot of praying and crying,” remembers Kelly.
“We wanted to spend as much time together as possible because we didn’t know how much longer he had.


Finding Dr. Vogelzang
It was during this dark time that the Bales discovered a savior.
Kelly kept seeing the name of a famous doctor at the University of Chicago Cancer Center pop up in internet chat rooms.
That doctor was Nicholas Vogelzang M.D., a world renowned expert on mesothelioma.
“I first became interested in the disease back in 1980 when I saw about eight patients who had mesothelioma, including two sisters, all within six months. So I wrote a paper on it,” explains Dr. Vogelzang.
The Bales went to see Dr. Vogelzang and they were blown away. “He was reading, writing and listening to

 
Searching for Hope
We thought, wow he’s smart,” remembers Kelly. Medical expertise aside, Dr. Vogelzang gave the
Bales

“Dr. V has done me right,” says Travis. “If plan A doesn’t work he always has plan B, C and D.”

Plan A was a chemo regimen of two drugs and it worked. There was a 70% tumor reduction.
The Bales were ecstatic. “We got the news right around Christmas time,” says Kelly.


Two Years Later

Travis went back to his normal life and tried to forget he ever had cancer.
But two years after he finished treatment, doctors found a nodule near his pericardium.
The Bales immediately came to see Dr. Vogelzang, who was now director at Nevada Cancer Institute.
Further testing indicated the disease was back.
“It was a shock. We felt like it was a punch in the gut,” explains Kelly.

But the Bales buckled down and as always, Dr. Vogelzang had options.

He put Travis on a Phase I trial for advanced solid tumors.
Because it is a Phase I study, this is the first time it is being used on humans.
To date, this drug has been used on fewer than 40 humans.
Regina Lee, Travis’ research nurse, monitors him very closely to establish
maximum tolerated dose and toxicity.
“As frightening as a Phase I trial seems, it has been my experience that
these patients find hope in them,” Lee explains.
“They are true heroes in this campaign to find viable drugs to fight cancer.”
There is a popular misconception that Phase I trials, also called developmental therapeutics,
are wild “scientific experiments” that pose a high risk for patients.

In fact, the opposite is true. Studies have proven that toxicity rates are actually

lower on Phase 1 trials when compared to the standard therapy.
This is due to good patient selection, close patient monitoring, experience of the
investigator and the fact that these new agents typically target tumors and not normal
tissue.
Plus, very often Phase I drugs are taken orally as pills, which of course is easier for the patient.
As for Travis, he likes being on a clinical trial. “Someone has to do it.
The drugs that helped me were once clinical trials.”


Romance and Adventure
These days, the Bales are commuting back and forth from South Dakota so Travis can get his
treatment from Dr. Vogelzang in Las Vegas.
Since he was first diagnosed, Travis has changed the way he looks at life. He takes more risks,
like sky-diving and riding a Harley.
Kelly has noticed another, more subtle difference. “He is more romantic, ”she says with a smile.
It is hard to plan anything long-term but they are cautiously optimistic.
“When I was first diagnosed I thought, oh no, I’m gonna die,
but then I said screw this. I am going to fight this thing,” says Travis. Kelly agrees.
“You have to be proactive,
you can’t lose hope.”


My wonderful and courageous husband
Travis Bales died Friday Sept 18th, 2009
after an 8 year fight with Mesothelioma.
Kelly Bales

Travis P. Bales

May 10 1972 - Sep 18 2009

Travis Bales, age 37, Huron, SD,
died Friday, September 18, 2009, at his home after a long battle with cancer.
His funeral service was held on 2:00 p.m. Tuesday, September 22, at First United Methodist Church with burial at Restlawn Memory Gardens Cemetery.
Memorials will be directed to the Mesothelioma Applied Research Foundation.Travis Phillip Bales was born on May 10, 1972, in Huron, SD.
His parents are Susan (Wessel) Neiffer and Steve Bales.
He attended schools in Huron.
Following completion of his formal education he worked at Dakota Pork in Huron and LSI in Alpena,
until ill health forced his retirement.
On June 16, 1995, Travis married Kelly Marie Schroeder.

They lived in Huron and also their cabin at Lake Thompson.Travis’ interests included camping, fishing, guns, boating, shooting fireworks, performing magic tricks, spending time at the lake cabin,
and following the Minnesota Vikings, Minnesota Wild hockey team, and the Huron All-Star hockey team.

He is survived by his wife, Kelly;
2 sons, Cody Schroeder, and Corey Bales and friend Abby Eide;
soon-to-be-born grandchild;
his mother, Susan Neiffer; his dad, Steve Bales;
his father, Phil Smith; 1 brother, Jesse Bales, 2 sisters, Lindsay Bales and Becky Smith;
grandparents, Jerry and Maggie Bales,
Darlene Van Tour, Doraine Wilson, and Jackie Bjorke;
his mother- and father-in-law, Allen and Rose Schroeder;
1 brother-in-law, Chad Schroeder;
and many aunts, uncles, cousins, and wonderful friends.
He was preceded in death by and infant brother,
Jeremy Bales;
and grandfathers, Max Smith and Dale Wessel.  

Borrow all the beauty that's around you every day.
Hold each lovely joy that life has ever brought your way
Store your happy moments so that every now and then
When your days aren't quite so bright
They'll bring sunshine back again.



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