Travis and Kelly' Story.
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Hi Travis and Kelly,
My husband died 12 years ago on the 1st June of pleural mesothelioma, just under 5 months from the
day he was diagnosed.
At that time in New Zealand they were just telling you to go home and get everything in order.
Nothing they could do.
It is nice to hear that people are surviving longer now.
Because of this I set up a website so people could put their stories on and give some hope to others.
If you would like to have a look through it you might like to add your story,
many regards from Deidre
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Dear Deidre
Hi Kelly,
If you managed to look through my website you will see that “hope” is a big thing that can keep you going. Dear Deidre,
Date: Mon, 29 Jun 2009 Hey Deidre,
Tray knew he was in trouble when he couldn’t tie his shoes. So the Bales went to their doctor and the news was devastating.
As residents of South Dakota,
the Bales did not have access to a major medical center. Finding Dr. Vogelzang
“Dr. V has done me right,” says Travis. “If plan A
doesn’t work he always has plan B, C and D.” Plan A was a chemo regimen of
two drugs and it worked. There was a 70% tumor reduction.
My wonderful and courageous husband
Travis P. Bales
May 10 1972 - Sep 18 2009
Travis Bales, age 37, Huron, SD, Borrow all the beauty that's around you every day.
My heart goes out to you on this time of year when you are remembering
your loved one....
thanks for the kind words...we are still fighting the horrible Meso monsters...although we now have
retreated to hospice care...we have done every possible treatment and now have resolved to just wait and see after 7 years
,...
he is only 37 years old, but we still have hope and faith..thanks again!!!
I did not realise how young your husband was. Was he only 30years old when he was diagnosed?.
That is a
terrible thing to have happened to you both.
How was he exposed to asbestos?. Where do you live.
I do
believe that.
When Thom was diagnosed there was not one ray of hope given to him and he did as they said and came home
to die. They took the hope from him. My sister was diagnosed with ovarian cancer and was told that it was terminal
but with some treatment they would give her a bit more time.
She had hope.
She went to Australia a couple of times
and then all round New Zealand to visit with her family and friends.
She lived her time of dying where as Thom died
his time of living.
One never knows what is round the corner
Regards from Deidre
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Travis was 29
when he was diagnosed. We live in South Dakota and went to the Mayo Clinic in Rochester MN at that time, he was also told
to go home and get his affairs in order and maybe try chemo but that it was probably hopeless.
It was so fortunate that
I had researched online and found a clinical trial at the National Institute for
Health in Bethesda MD.
He did this huge surgery and chemo to the peritoneum but it returned 6 months later. The Dr
there, referred us to Dr ...... in Chicago and he was a God send...
He started him on Alimta which at that time wasn't even
FDA approved, but Trav's tumors were reduced by70%!!!
We continued with life then 2 years later the tumors returned
in his lungs, around his heart and neck nodes...we have done numerous clinical trials and conventional treatments since;
with no reduction.
He has now decided along with the Dr's that there really is nothing else to try, so now we are just
living like today is as if there is no tomorrow.
Trav had several small exposures as a child through his dad's work
and such but don't know exactly where he was exposed.
Nice chatting hope to hear from you soon.
Kelly![]()
Hi Kelly, can I put your story on my site using the emails you have sent me. I will show
you what I have done before putting it on the net for your approval. If so have you any photos you would like to go on
also,
regards from Deidre
It would be fine and if you want to read an article that Nevada Cancer
Institute did on Tray it is listed under publications and it was the spring 2006 issue of their breakthrough magazine on
the NVCI site.
There is also a picture of him on there.
Kelly
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Aside from his rapidly bulging belly, Travis looked
like a picture of perfect health; strong, vibrant, rugged – a real man’s man who loved football, family and the great
outdoors.
Devoted husband to Kelly, loving father to Cody and Corey.
The 29-year-old Travis had his whole
life in front of him.
Then, out of the blue, his stomach started swelling. At first just a little.
“Travis, you look
pregnant,” Kelly teased.
But the bloating worsened. Finally, it was so bad that he could barely eat without feeling sick.
Travis was diagnosed with malignant mesothelioma,
a disease in which malignant cells form in the lining of the chest or abdomen. It is a rare form of cancer that is
frequently associated with asbestos exposure.
That night the Bales scoured the internet and what they read was
horrifying;
life expectancy for malignant mesothelioma was 12-18 months.
“I thought I was going to die,” Travis recalls.![]()
So, they packed their bags, left their boys and set out to find the best treatment for Travis.
Their first stop was the Mayo Clinic
in Rochester, Minnesota, one of the leading cancer institutions in the nation.
They told him that nothing could be done and that Travis
should pretty much get his affairs in order.The Bales persevered. Next stop, the National Institutes of Health in Bethesda, Maryland.
NIH immediately enrolled Travis in a clinical trial.
Unfortunately, that didn’t work. Neither did the next trial they put him on.
Haggard and thin, his weight plummeted from 220 pounds down to 150.
With nowhere else to turn, the Bales went back home.
They started
looking at cemetery plots and talked to the boys about their dad dying.
“There was a lot of praying and crying,” remembers Kelly.
“We wanted to spend as much time together as possible because we didn’t know how much longer he had.
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It was during this dark
time that the Bales discovered a savior.
Kelly kept seeing the name of a famous doctor at the University of Chicago Cancer Center pop up in
internet chat rooms.
That doctor was Nicholas Vogelzang M.D., a world renowned expert on mesothelioma.
“I first became interested in
the disease back in 1980 when I saw about eight patients who had mesothelioma, including two sisters, all within six months. So I wrote a paper
on it,” explains Dr. Vogelzang.
The Bales went to see Dr. Vogelzang and they were blown away. “He was reading, writing and listening to![]()
Searching for Hope
We thought, wow he’s smart,” remembers
Kelly. Medical expertise aside, Dr. Vogelzang gave the
Bales
The Bales were ecstatic. “We got the news
right around Christmas time,” says Kelly.
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Two Years Later
Travis went back to his normal life and
tried to forget he ever had cancer.
But two years after he
finished treatment, doctors found a nodule near his pericardium.
The Bales immediately came to see Dr.
Vogelzang, who was now director at Nevada Cancer Institute.
Further testing indicated
the disease was back.
“It was a shock. We felt like it was a punch in
the gut,” explains Kelly. But the Bales buckled down and as
always, Dr. Vogelzang had options.
He put Travis on a Phase I trial for advanced
solid tumors.
Because it is a Phase I
study, this is the first time it is being used on humans.
To date, this drug has been used on fewer
than 40 humans.
Regina Lee, Travis’ research nurse, monitors him
very closely to establish
maximum tolerated dose and toxicity.
“As frightening as a Phase I trial seems, it
has been my experience that
these patients find hope in them,” Lee explains.
“They are
true heroes in this campaign to find viable drugs to fight cancer.”
There is a popular misconception that Phase
I trials, also called developmental therapeutics,
are wild “scientific
experiments” that pose a high risk for patients. In fact, the
opposite is true. Studies have proven that toxicity rates are actually
lower on
Phase 1 trials when compared to the standard therapy.
This is due to good patient selection, close
patient monitoring, experience of the
investigator and the fact
that these new agents typically target tumors and not normal
tissue.
Plus, very often Phase I drugs are taken
orally as pills, which of course is easier for the patient.
As for Travis, he likes being on a clinical
trial. “Someone has to do it.
The drugs that helped me
were once clinical trials.”
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Romance and Adventure
These days, the Bales are commuting back and
forth from South Dakota so Travis can get his
treatment from Dr.
Vogelzang in Las Vegas.
Since he was first diagnosed, Travis has
changed the way he looks at life. He takes more risks,
like sky-diving and riding
a Harley.
Kelly has noticed another, more subtle
difference. “He is more romantic, ”she says with a smile.
It is hard to plan anything long-term but
they are cautiously optimistic.
“When I was first diagnosed I thought, oh no,
I’m gonna die,
but then I said screw this. I am going to fight
this thing,” says Travis. Kelly agrees.
“You have to be proactive,
you can’t lose hope.”
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Travis Bales died Friday Sept 18th, 2009
after an 8 year fight with Mesothelioma.
Kelly Bales
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died Friday, September 18, 2009, at his home after a long battle with cancer.
His funeral service was held on 2:00 p.m. Tuesday, September 22, at First United Methodist Church with burial at Restlawn Memory Gardens Cemetery.
Memorials will be directed to the Mesothelioma Applied Research Foundation.Travis Phillip Bales was born on May 10, 1972, in Huron, SD.
His parents are Susan (Wessel) Neiffer and Steve Bales.
He attended schools in Huron.
Following completion of his formal education he worked at Dakota Pork in Huron and LSI in Alpena,
until ill health forced his retirement.
On June 16, 1995, Travis married Kelly Marie Schroeder.
They lived in Huron and also their cabin at Lake Thompson.Travis’ interests included camping, fishing, guns, boating, shooting fireworks, performing magic tricks, spending time at the lake cabin,
and following the Minnesota Vikings, Minnesota Wild hockey team, and the Huron All-Star hockey team.
He is survived by his wife, Kelly;
2 sons, Cody Schroeder, and Corey Bales and friend Abby Eide;
soon-to-be-born grandchild;
his mother, Susan Neiffer; his dad, Steve Bales;
his father, Phil Smith;
1 brother, Jesse Bales, 2 sisters, Lindsay Bales and Becky Smith;
grandparents, Jerry and Maggie Bales,
Darlene Van Tour, Doraine Wilson, and Jackie Bjorke;
his mother- and father-in-law, Allen and Rose Schroeder;
1 brother-in-law, Chad Schroeder;
and many aunts, uncles, cousins, and wonderful friends.
He was preceded in death by and infant brother,
Jeremy Bales;
and grandfathers, Max Smith and Dale Wessel.
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Hold each lovely joy that life has ever brought your way
Store your happy moments so that every now and then
When your days aren't quite so bright
They'll bring sunshine back again.
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